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Living with Guillain-Barre Syndrome

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STILL SUFFERING
by: Richard on Mon, Jul 28 2008
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I decided to tell my story after reading some of the others on here. My name is Richard Ross, I am a Sioux Indian from S.D. and am 47 years old now. I had GBS when I had just turned 18 in 1980, I woke up on a Wednesday and was lethargic all day, I thought maybe I had slept too much, but on Thursday could hardly move, then Friday morning fell out of my bed and could not get up and was taken to a hospital where I stayed for a week and they could not figure out what was wrong with me. I had absolutely NO strength in my extremeties. They then shipped me to a larger hospital and my Doctor there knew immediately what it was, they did a spinal tap the next morning and told me the outcome. I spent 3 months there in Physical Rehab and could walk with the aid of crutches about 20 feet when I finally left the hospital, I had gone from being a 6′1″, 167 lb muscular athlete to a 107 lb bag of bones. It took me another 6 months before I could walk any distance without crutches, and a couple more years before I was able to run normally.

My legs never did regain their strength totally and I still suffer today from shaking in my limbs, very noticable in my hands, muscle cramps and spazms, and the last couple of years suffer from constant fatigue. I am thankful that I have been able to live a fairly normal life but also have a fear in the back of my mind of a reaccurance.
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Comments
  1. Sat, Feb 07 2009
    Hi Richard- My name is Shawn- Your story is familiar to all of us here in the forum. It's a great place to talk to others that have been struck by GBS...Read

July 2008

  • Donna - by Donna - (Tue, Jul 29 2008)
    I contracted Guillian Barre’ May 3, 2008. Spent a week in ICU unit and 3 weeks in Rehab. It is now late July and Thank God I can walk with some difficulty and work right now just part time. [more..]
  • GBS - by Jen - (Mon, Jul 28 2008)
    I was diagnosed with GBS 2 days after x-mas. It got to the point where I had Bells palsy of face. [more..]
  • STILL SUFFERING - by Richard - (Mon, Jul 28 2008)
    I decided to tell my story after reading some of the others on here. My name is Richard Ross, I am a Sioux Indian from S.D. and am 47 years old now. I had GBS when I had just turned 18 in 1980 [more..]
  • Guillian-barre - by kathy - (Thu, Jul 24 2008)
    In 1954 I was 6 years old and had contracted GBS. This was something very new to the medical world then, so my treatment was not immediate. [more..]
  • I was a Quad - by Mary K. - (Mon, Jul 21 2008)
    After a successful back surgery I was supposed to be discharged but my foot dropped and I became increasingly weak. My doctor recognized this immediately and organized a team to diagnose and treat. [more..]
  • I SURVIVED…WITH PRAYER - by Tracey - (Thu, Jul 17 2008)
    On, Wednesday 3/5/08 I became ill. I woke up that morning not feeling the best. My feet were tingly and felt numb. I ignored the feeling, thinking that I must have been tired or something. [more..]
  • 27 years with GBS - by Martin - (Tue, Jul 15 2008)
    My name is Martin Sisneros and when I was 19 years old I had a severe case of Guillain Barre Syndrome in August of 1981 (27 years ago) while in Basic Training in the US Army in Fort Leonard wood Missouri. [more..]
  • Guillilan Barre - by MJ - (Thu, Jul 03 2008)
    I have still some residue of this Syndome. I first lost my feelings in my legs 9 yesrs ago. [more..]

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