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This section is a place to share stories about Living with Guillain-Barre Syndrome.
Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.
You may also Help others by sharing your story.
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March 2008
- “Jason, A Miracle” - by Grace H. - (Wed, Mar 19 2008)
My son Jason was just 8 yrs. old when he had G.B.S. after being admitted at one hospital on 3/24/06 and had various of test runned on him, including the spinal tab [tap].
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- 22 Years Old and Totally Paralized [paralyzed] - by Anne-Marie - (Wed, Mar 12 2008)
It was St. Patrick’s Day 1987 and several friends and me were enjoying this very “green” holiday. However, I noticed my toes were tingling something fierce. This was a Sunday, and by Friday, I was weak, couldn’t lift my arm to wash my hair, and dropped things constantly.
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- Childhood GBS-way back when - by Mellie - (Wed, Mar 12 2008)
Back in 1981 when I was five years old, my legs began hurting and I started walking with a strange gait.
Many doctors and two spinal taps later, I was diagnosed with GBS From the start to diagnosis was weeks. Things were going very badly for me by that point.
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- Guillain Barre Syndrome - by Harerimana - (Mon, Mar 10 2008)
Mine was diagnosed after 3 days.
I was admitted to hospital but left without signs of improvement.
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- About My Wife who was disabled by GBS in 6/2000 - by Terry - (Mon, Mar 10 2008)
Everything started out in February 2000 for my wife.
Well, at first she started getting sick at her stomach, accompanined by vomitting.
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- Still Living with Gillian Barre Syndrome - by Cheryl - (Mon, Mar 10 2008)
I was 49 years old and just got married for the very first time. After just one month of marriage I came down with the flu, then my legs started going numb and the pain, all over my body, was unbearable. That’s when I got scared.
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