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Living with Guillain-Barre Syndrome

This section is a place to share stories about Living with Guillain-Barre Syndrome.

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scared at age 15
by: angel on Tue, Nov 20 2007
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well my story is long so i will tell you some of it.when i was 15 yrs old i was diagnosted with gbs i didnt understand it all i knew was i couldnt feel my body or move it.i had to go through several testing and treatments rehabs i was in the hospital the most of 93 then in 94 i was back in the hospital again with gbs i was placed on a ventalter to help me breath.i was in the hospital off and on the whole year of 94.i went through alot been sick alot still havent recovered from gbs it has damaged my muscles and nerves.theres more to my story just to much to write but i want ppl to know if your a gbs victim your not alone i am right with you.i have lived my life in fear and will continue to live in fear:i just thank god for my mother who has been there for me through all of this..
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  1. Tue, Nov 27 2007
    I read your story and I cried. Memories come flooding back from a year ago when my 4 yr old was diagnosed with GBS. You are a brave girl and I must s...Read

November 2007

  • lynne - by LYNNE - (Wed, Nov 28 2007)
    My very brave son contracted GBS nearly 3 years ago-January 1 2005-our New Year started with a definite BANG!!!!! Within 8 hours he was on life support and air lifted to a major hospital. So started our horrid journey and he had just [more..]
  • Mom Of An Angel - by DR - (Tue, Nov 27 2007)
    January 2007 was the beginning of a year of fear for me. My 4 yr old got a gastro flu and went from walking one day to not being able to stand on her legs the next. We took her to the doctor and he admitted her to the hospital for 24 hrs. She was so weak she could not stand [more..]
  • scared at age 15 - by angel - (Tue, Nov 20 2007)
    well my story is long so i will tell you some of it.when i was 15 yrs old i was diagnosted with gbs i didnt understand it all i knew was i couldnt feel my body or move it. [more..]
  • Trying Times - by Kristy - (Mon, Nov 19 2007)
    Hi my name is Kristy, and I had GBS when I was 6 years old. I was totaly paralyzed from the neck down and had a tracheotomy so I could breath. I am now 23 years old and decided to [more..]
  • Currently Going thru GBS with my father - by tammyg - (Wed, Nov 07 2007)
    My mother and father just went on a cruise last week. My father began to feel funny , not able to walk, headache and tingling. 2 days before the ship was to dock, and went to the infirmary on the ship. [more..]
  • I don’t get sick - by Gerri-Jo - (Tue, Nov 06 2007)
    My symptoms started with tingling in my feet. I thought it was because I was on my feet for 10-12 hours a day. I was a restaurant manager, so of course I was tired. Then it moved to my fingers, and I still didn’t think anything because it would dissipate throughout the day. [more..]
  • Recovered - by Douglas - (Fri, Nov 02 2007)
    For the onset was slow. At first I thought my trouble getting out of bed was simply due to being tired. But over the course of several days, I went from “dragging myself out of bed” in the morning to being unable to roll over. [more..]

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