Guillain-Barre Syndrome">
Healthcommunities.com
Home Search SiteMap Forum Store Physician Board

Living with Guillain-Barre Syndrome

This section is a place to share stories about Living with Guillain-Barre Syndrome.

Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.

You may also Help others by sharing your story.

To quickly access health information from your website's browser, download
Healthcommunities.com's healthchannels toolbar.


Currently Going thru GBS with my father
by: tammyg on Wed, Nov 07 2007
Facebook Twitter

My mother and father just went on a cruise last week. My father began to feel funny , not able to walk, headache and tingling. 2 days before the ship was to dock, and went to the infirmary on the ship. They did not know what it was, but did not think it was life threatening, so they had an ambulance meet my parents at the dock and transport him to the local hospital. At this point, he could no longer walk at all, and was having to be carried everywhere in a wheelchair. They never thought to medivac him off the ship when it first started.

He was admitted immediately into the hospital, and by the end of the day had been diagnosed with GBS. We live 450 miles away, so we have had to set up housekeeping here because he cannot be transported at this time. They tell us he will be in ICU for at least the next 3 weeks, they had to intebate him today because of congestion in his lungs (they are trying to avoid pneumonia). They have also put him in a medically induced comma because of the tube in his throat, and said this will last about 10 days. He is going through the plasma treatments every day, (he has had 4 so far).

He is currently in critical condition in ICU.

Please tell me that this is all part of the course of this illness. Has anyone else’s GBS been this bad? At present, his legs are totally paralyzed up to his diagraphm area and he can move his hands, but has no coordination in them.


Facebook Twitter

Comment on this

Comments
  1. Mon, Feb 09 2009
    Kim...not sure if I'm replying properly on this forum but...here goes. My Dad is now 6 weeks in the hospital. 5 weeks in CCU and now 1 week in a speci...Read
  2. Sat, Feb 07 2009
    Hi- I have been on the couch for two years because of GBS. I'm not bed ridden but getting close. I've battled this crap for 4 years now, and only seem...Read
  3. Mon, Jan 26 2009
    Hi: My Dad is in the hospital now for 3 weeks in CCU with a trach now from GBS. Can you share what's been going on with your Dad and how you are handl...Read
  4. Tue, Jan 20 2009
    Hi, Just curious if yoiur dad is ok? My dad has the same syptoms? Thanks, Kim...Read
  5. Wed, Nov 21 2007
    yes i am a victim og guillian barre i am 29 yrs old when i was 15 i was diagnost with it i have been through hell with it i was placed on a vertalater...Read

November 2007

  • lynne - by LYNNE - (Wed, Nov 28 2007)
    My very brave son contracted GBS nearly 3 years ago-January 1 2005-our New Year started with a definite BANG!!!!! Within 8 hours he was on life support and air lifted to a major hospital. So started our horrid journey and he had just [more..]
  • Mom Of An Angel - by DR - (Tue, Nov 27 2007)
    January 2007 was the beginning of a year of fear for me. My 4 yr old got a gastro flu and went from walking one day to not being able to stand on her legs the next. We took her to the doctor and he admitted her to the hospital for 24 hrs. She was so weak she could not stand [more..]
  • scared at age 15 - by angel - (Tue, Nov 20 2007)
    well my story is long so i will tell you some of it.when i was 15 yrs old i was diagnosted with gbs i didnt understand it all i knew was i couldnt feel my body or move it. [more..]
  • Trying Times - by Kristy - (Mon, Nov 19 2007)
    Hi my name is Kristy, and I had GBS when I was 6 years old. I was totaly paralyzed from the neck down and had a tracheotomy so I could breath. I am now 23 years old and decided to [more..]
  • Currently Going thru GBS with my father - by tammyg - (Wed, Nov 07 2007)
    My mother and father just went on a cruise last week. My father began to feel funny , not able to walk, headache and tingling. 2 days before the ship was to dock, and went to the infirmary on the ship. [more..]
  • I don’t get sick - by Gerri-Jo - (Tue, Nov 06 2007)
    My symptoms started with tingling in my feet. I thought it was because I was on my feet for 10-12 hours a day. I was a restaurant manager, so of course I was tired. Then it moved to my fingers, and I still didn’t think anything because it would dissipate throughout the day. [more..]
  • Recovered - by Douglas - (Fri, Nov 02 2007)
    For the onset was slow. At first I thought my trouble getting out of bed was simply due to being tired. But over the course of several days, I went from “dragging myself out of bed” in the morning to being unable to roll over. [more..]

Archives:

  • 2009 January February March April May June July August September October November
  • 2008 January February March April May June July August September October December
  • 2007 April May June July August September October November
  • The submissions from our site visitors do not reflect the opinion of Healthcommunities.com, Inc. (HC). The Content of HC's sites is intended for informational and educational purposes only, and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. HC does not provide medical advice. Never disregard professional medical advice or delay seeking it because of something you've read on an HC website. Always seek the advice of your physician or other qualified health care provider regarding any medical question or condition. (See also: Website Disclaimer)