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Living with Guillain-Barre Syndrome

This section is a place to share stories about Living with Guillain-Barre Syndrome.

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GBS not hereditary!


by: Merrilyn on Thu, Aug 23 2007

I want to start out saying even though it’s said that GBS isn’t hereditary you could have shared the same trigger. My Mom had GBS 5 years ago and has completely recovered. I was diagnosed in October 2006.

I had been misdiagnosed twice before I found a good doctor. The first doctor just prescibed medication and the second docter just told just gave me a higher dosage. It’s now August 2007 and I’m now on the road to recovery. After 4 IVIG treatments, lots of therapy and a strong will, I can dress my self, walk with a walker (I have leg braces), shower and feed myself. It’s been a very hard year but now I see the light at the end of the tunnel.

My advice is to don’t give up! Always try to be positive. I learned my lesson. Ask questions from docters, nurses& therapists. Docters don’t always tell you everything.

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Comments
  1. Sat, Aug 25 2007
    Hi, My name is Courtney Fuller and I was diagnosed with Guillain-Barre Syndrome in December of 2000. I was in 11 years old and in the 6th grade. It ...Read

August 2007

  • undiagnosed? guillain barre’? - by kiki - (Mon, Aug 27 2007)
    end of july 07 got up and could not stand on my legs it was a weakness i had never experience b4- numbness weakness fatigue and some burning. also a rubbery feeling and lack of control like the muscles over extened. [more..]
  • GBS not hereditary! - by Merrilyn - (Thu, Aug 23 2007)
    I want to start out saying even though it’s said that GBS isn’t hereditary you could have shared the same trigger. My Mom had GBS 5 years ago and has completely recovered. I was diagnosed in October 2006. [more..]
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