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Living with Guillain-Barre Syndrome

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by: Jennifer on Mon, May 21 2007

My name is Jennifer, I was diagnosed with Guillian Barre when I was in grade 1. One morning I tried to stand up and go to the bathroom, and I could not move my legs. It was so strange because the previous day I still played with my sister, I remember being more tired then usual, but I could still walk.

The illness got worse and worse, eventually after several tests I was diagnosed and I had Guillian Barre, it was terrible. I could not walk, I could not move my arms and eventually I was paralyzed. I could not eat by myself, it was so severe that I choked on a teaspoon of water. It was very bad, I was 7 years old and could not play outside, like all my friends and siblings. After 1 and a half years in hospital I went home. I could walk but not for long periods at a time. My mother had to push me around in a pram.

Today at 23, with the love and strengh of God I am able to walk and do about just anything that a normal 23 year old can do. I just pray to God that I never get this illness again. It was the most terrible stage in my life.

Now I’m trying to find out if this illness is genetic. Also I wonder if you can have this illness more then once and what you can do to prevent it from coming back.

Thank you and God Bless

Comment on this

Comments
  1. Sun, Oct 07 2007
    I would love for someone to give us some input on how to treat / avoid a reoccurence. Everytime I get sick now I have "symptoms" Not sure ...Read

May 2007

  • Guillain-Barre Syndrome - by Kimberly - (Tue, May 29 2007)
    I am a 37-year-old female who came down with Guillain-Barre Syndrome April 18, 2007. One week prior, I had 5 vaccinations in preparation for a trip to Africa. [more..]
  • Saved. - by Jennifer - (Mon, May 21 2007)
    My name is Jennifer, I was diagnosed with Guillian Barre when I was in grade 1. One morning I tried to stand up and go to the bathroom, and I could not move my legs. [more..]
  • Guillian Barre - by Cheryl - (Fri, May 11 2007)
    I was diagnosed with GB when I was 13 years old. It started after a very bad cold and the initial symptoms were weakness and pain in my upper legs. [more..]
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