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Living with Fibromyalgia

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What’s Next for Me?
by: AGR on Thu, Jan 29 2009
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I was finally diagnosed about 8 years ago with fibromyalgia.I have constant pain in my arms and legs.I used to attend college for teaching but had to quit.I worked for the school board for 10 years but had to quit that one year ago.My husband and two kids have adjusted to my illness.My parents live about ten miles away and they just dont understand me or my disease.

Once in awhile I dont talk to them or go see them for about a week and they get angry with me and I dont know how to explain to them about how I feel.They think that I shouldn’t be taking medicine.They say that I need to push myself more.Sometimes I say that I wish that I had cancer then maybe they could understand me.

I dont know why but once a month i guess I just like to not have to deal with them.I love them both dearly.Now they are afraid that I am suicidal which I am not.Does anyone know how I can explain to them exactly what this disease is and how it affects me.I am now trying to get disability social security which I have been denied twice now.How do I explain how I feel? I feel like I am the only one other than my husband that understands how I feel and why.Thanks for listening.
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Comments
  1. Sat, Feb 14 2009
    Do what i did. I looked it all up and printed out the symptons, and everything off my computer, handed it to my mother and said now read this and tell...Read
  2. Mon, Feb 02 2009
    a name would be nice to put with the pain.My name is ralph pelkey i live in mulvane kansas i have had fibro for 13 years. Iwas always a hard working m...Read

January 2009

  • What’s Next for Me? - by AGR - (Thu, Jan 29 2009)
    I was finally diagnosed about 8 years ago with fibromyalgia. [more..]
  • just shot meeeee - by ralph p. - (Tue, Jan 27 2009)
    I just dont know anymore.I was diagnosed in 1996 with firbomyaigia [fibromyalgia]. [more..]
  • fibromyalgia - by jan - (Thu, Jan 15 2009)
    i have lived with fibromyalgia since 1993 it took them 3 years to find out that i had it ..it started with pain in my shoulders legs and arms …and now i have it all over there is never a day with out pain…and i have to say it get worse year by year [more..]
  • Living with Gradual Onset Fibromyalgia - by Brittany - (Tue, Jan 06 2009)
    My symptoms,as far back as I can remember anyways, seemed to start around age ten (I’m 22 now)but I can’t be sure. I was only recently diagnosed with Fibromyalgia (within the last year). [more..]
  • constant headaches - by berlynza - (Tue, Jan 06 2009)
    I am 27 years old, and i’ve had constant headaches for 13 years. Then i had my 3 child in 2006, and then i started getting pain in my hips and back, then my hands,in my neck and shoulders and in my knees. [more..]

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