Living with Epilepsy/SeizuresThis section is a place to share stories about Living with Epilepsy/Seizures. Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download Migralepsy 
My name is theresa and I am 40 years old I have been suffering with migraines for six years.I have been to several doctors even expert neurologist at duke hospital,but it seems no one can figure out why I pass out when I get a migraine I have had an mri and cat scans and they say my neck is straight and two of my vertabrae stick out but they can”t figure out why.there is a history of tumors that run in my family,my grandfather died of a brain tumor and two of my cousins had surgery for tumors in the back of the brain where the stem is.the disease is called von hippel lindau disease.now i am afraid i might have it ,but the doctors say they do not think i do.two years ago i lost my job because of my illness so i lost my health insurance now i cannot afford to go to the doctor,and i am barely making it.so now when my headaches get bad i get seizures as well and like i said it has been going on now for six years.
October 2009
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