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Living with Epilepsy/Seizures

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Ben
by: Cheryl on Mon, Jan 19 2009
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My son was 5 years old when we noticed the first seizure but the doctors said he propably had it well before then. At first he was diagnosed with Bi Focal Epilepsy because he was a child & only had them while he slept.He was put on Tegratol meds which helped control it all.The only set backs we had were when he would grow or gain weight, he would siezure [seizure] because the levels would drop. We were told he would grow out of it because it was a childhood epilepsy Ben is now 17 years old & the latest EEG shows his brain is sparking off in all different places (as a child it was confined to his right temporal lobe),His meds keep increasing to control it , but he still siezures when the dose isn’t high enough & he is now aware of them. I don’t think he will grow out of it and it scares me to think because of this awful condition his life could be cut short.As a parent you feel so helpless and it breaks your heart
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  1. Thu, Feb 12 2009
    Hi, my name is Harley. Like your son, I too have Epilepsy and was diagnosed with it at the age of five and prescribed tegretol as well. Also ironicall...Read

January 2009

  • Long way to go. - by Clint - (Wed, Jan 21 2009)
    35 years old maxed out on 2 anticonvulsants and still floppin around. [more..]
  • Ben - by Cheryl - (Mon, Jan 19 2009)
    My son was 5 years old when we noticed the first seizure but the doctors said he propably had it well before then. At first he was diagnosed with Bi Focal Epilepsy because he was a child & only had them while he slept. [more..]
  • Been on this road for a long time… - by DAS - (Wed, Jan 14 2009)
    my son is almost 15yrs old and has epilepsy to boot. Most precious thing in my life but a journey like no other. I also work w/ this population too and am so happy that earlier diagnosis and treatment is in place for it truly makes a difference. [more..]
  • they just don’t know what to do anymore - by kristina kjk - (Fri, Jan 02 2009)
    I was diagnosed with epilepsy at the age of 17….and yet i had already lived with it since the age of 2 months. [more..]

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