Living with Epilepsy/Seizures

Well I was 17 yrs old and I had no history of seizures It started out of the blue. I was at home having fun with my brother and neices playing pillow fighting and then all of a sudden it got hot and I couldn’t breath so I stopped and with outside to caught my breath so I came back in cause I was feeling better. So we started back and the next thing I knew I was in the hospital and unaware of what had happened to me so my mom told me they I had an seizure But I was okay so they let me go home after awhile of monitoring.

The next day I try to get up and go to the restroom and conldn’t move my legs and I was very weak. So my parents to me to the doctor and to see what was going on so my doctor order some tests and me a wheelchair me being the type of person I was I didn’t need help I did every thing on my own. So my mom had to help me with everything it was so nerve recking have some one do this or that things you could do I was in a wheelchair for six months but I got tried of it and begin learning how to do everything I needed to in do for myself in three months.

my sixth month I get tried out of the wheelchair and started trying to walk it was hard and I don’t get up. By this time I ended back in because I had some many seizures but this seizure almost killed me my heart rate down to 45bpm and my oxygen level was at 65. I stayed in the hospital for two weeks people that would in to check on me would tell my mom that they thought it was an old woman that they was coming to check on but I was only 17 that was funny to me.

So after that I was sent to children hospital in little rock and could not figure out why I was having seizures and why my mobility was as if I had polio it was heartbreaking to hear it a mental thing but you knowing it not but it as if they see things that they have never seen the first thing they say is we don’t know and we can’t help you. it went on like this for a long until I found an doctor in memphis that worked with me and found out it was epilepsy and that I was having them in my sleep so he try trileptal with me it help for maybe a month then they got worsier. I was having them every other day 2 and 3 times a day my seizures are those that come right behind each other my family says it terrifies them to see me in that way and so much pain it controlled my life some days I was able to go to school and some I were to weak to even got out of bed.

my 12th grade year I spend not even a third of the year at school. I was an honor student number 6 in our class I thought I was not going to even get to walk across the stage to recieve my diploma but with god’s help I did it and was honored because I showed no givivg up. My saying was not to give up because there is always some way to make it and life was a gift from god so there is a plan and im not going to give up.

Now i’m 22 with 3kids but I still have seizures with the loss of my mobility and the blessing about have my kids is they can sense when im sick or getting sick. my 4 yr old asks me momma is you feeling only why don’t you lay down and I go get momma. then my 2yr old seen me having one and I couln’t get his daddy’s attention he talks baby talk but knows how to say dadda and mamma. I just had one about two days ago and I couldn’t call out to his daddy so he went to him and said dadda and grab him the hand showing him that I was sick. Me unaware of what had happen his dad told me after I woke up what he had did I was shocked because you wouldn’t expect a baby knows how to get and know when help is need.

I’m 9mths pregnants with my third and every pregnancy i’ve had seizures an no change in how they are. now i’m on lamictal i’ve been on it for about a year it helped for about six mths then they started back. my body has got to the point were it doesn’t let it stay in my blood stream so they are looking to change it and see what that my do. But i’m trying for my family but its times I say I give I don’t want to try anymore.

But there’s that little voice in the back of my head saying you can do it. but things are hard because getting a job and knowing I have seizure like I do would be a waste of time. Driving I missed and good times in general I miss but I pray that some one helps me. I know what it means don’t take life for granted. But if there is anyone that is having my symptoms or know anyone please respond and give me tips or advice on how to go about this life changing experience.