Living with Epilepsy/Seizures

I had my first diagnosed seisure [seizure] when I was 14 years old, a grand mal in the middle of the night, and I have been having grand mals ever since. I do consider myself lucky tho, as I have simple partial seisures just befor my grand mals and it gives me a chance to get myself to a safer place.

As a small child I remember haveing spells, which I now recognize as simple partials, but my ‘rents and doctors just told me I was fine, to sit down and relax. After years of learning to manage these smaller seisures without medication, the doctors finally put me on medication, following my midnight which so far have not been affective, and all my EEGs, catscans and test come back that Im a perfectly helthy person who just happens to have seisures, so if your reading this and thinking that this sounds like you, your not alone.

It is extremly frustrating not knowing whats wrong with you or why its happening, and more so, trying to explain to others my situation. It feels as if they wont or cant understand whats its like to be poked and prodded, leaving your pride at the hospital door, or worse still, having to explain to your boss why you need to go home to get changed…. does anyone else feel like that somtimes?

I have lost numerouse jobs due to seisures, even though you kno its discrimination, but theres nothing you can do to stop it. my final words to anyone who is reading this and dealing with the same things, I hope we can stand together and tell the world, WE HAVE EPILEPSY WE ARE NOT DISABLED!!!!!!!!!!