Living with Epilepsy/Seizures

I began having seizures about 6 yrs ago. I am now 36. I’ve always only had seizures in my sleep, until Saturday, when I had my first daytime seizure I had been seizure free for almost 4 yrs. and decided on my own to wien myself off my medication. Now, almost 4 yrs ago when I had my last seizure I was doing the same thing under doctor’s instructions. It didn’t work then either. But, I tried again only because the doctor had said I might try again in a few years, and, my perscription was up and I had lost my insurance.

No, I did not tell my doctor about this…. I didn’t even mention it to the wife. I had my first seizure in front of my son. All I remember is my wife had realized I hadn’t been taking my pills(Dylantin), she gave me a bunch of hell about it, then went down the hall. That’s it. The next thing I remember I am sitting in my chair and my wife is telling me I just had another seizure. I HATE THAT!

I cannot believe the timing of the seizure. My tounge is all chewed up again, but my son was alright. He was sitting on my lap at the onset. I thank the Creator for allowing me to be at home, sitting in my recliner, when I had this last one. Never again. Don’t be stupid. It’s hard to really imagine what it must be like to watch someone, especially your spouse, having a seizure. I never remember anything except the aura. I’ve had these aura’s before during the day but never had a seizure. They are weird. Sometimes I feel like I can control this aura. Of course when I’m sleeping I never remember the aura or if I even have one. I guess I’m just assuming that I do.