Living with Epilepsy/SeizuresThis section is a place to share stories about Living with Epilepsy/Seizures. Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download Change in seizure frequency 
I had my first seizure when I was 4 years old (I’m now 33) and it was a grand mal seizure where I was trying to swallow my tongue. For years after that leading into adulthood I had petit mal seizures that were controlled by Phenobarbitol. Also roughly during the time from going from Tegretol/Carbatrol to Depakote I went from having petit mal seizures to having grand mal (tonic clonic) or possibly even myoclonic. They really seem to be a combination. My petit mal symptoms were, if I had them in my sleep, I slept like normal and just had a headache WAY worse than a migraine after waking up that lasted all day. When very, very young, though, I did have a recurrent dream of being chased by something I couldn’t see on a deserted army base where the outline expanded and contracted with my heartbeat. I also sometimes had one of swimming in a circular, stadium-like pool with people sitting all the way around watching. If I had them awake I had deja vu where I always heard the same voices I heard when I had one as a child in our gym at school and all I felt like doing was just standing or sitting still until it passed even though I could move and talk if I needed, and could keep anyone from knowing it was happening if I wanted to. There were no side effects afterward from having one while awake. Presently the awake ones have not changed. They are a rarity as they have always been. The change has come in what happens when I’m asleep. Instead of having them 1-2 times a year (I once went 4 years between) I now have them 1-3 times a month. Also instead of just sleeping I may throw limbs around (my shoulder was originally dislocated during one), and I gnaw my tongue. I no longer have the recurrent dream about the army base or pool, and feel extremely fatigued and sometimes disoriented. Has anyone ever heard of this, had it happen to them, or know of the cause(s)? And if anyone has, what was the treatment?
September 2007
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