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Living with Epilepsy/Seizures

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My story with epilepsy


by: Julie on Tue, Sep 11 2007

My name is Julie, I was diagnosed with epilepsy when I was 14. Although the doctors think I was born with it. It started out to be only petite mal and with in about 2yrs I was haveing partial complex. They some what got them under control. Until I was in a car accident when I was 19.

All of a sudden at least from what i remember I started to have grand-mals. The doctors said that it was probably there before the accident. I didnt care I was too depressed I just wanted it to stop. My parents I tried everything money was going fast. It seemed if years/hours had finally turned into minutes. Finally when I was 26 yrs old my parents helped me get on some insurance thru this hospital. That Hospital saved my life in more ways then one. The Hospital is in Denver, Colorado.

At last the neurology team took over. Over the next several years I went on and off meds just to find the mix of medication. I finally found it. Im now 29yrs old I can function in society. It took awhile. I still have some break throughs. The vagal nerve stimulater works great or as they say (VNS). For my grandmals non since they put it in. the meds are great. What Im trying to tell everyone is it took me 29yrs to be at this great place and happy so dont give up you will find your meds and get control just stick with it. Just keep smiling

Comment on this

Comments
  1. Fri, Oct 05 2007
    That is really great to hear and I hope many others hear and listen to your words. My seizure problem most likely isn't as bad as most others, althoug...Read

September 2007

  • Change in seizure frequency - by Sherwin - (Sun, Sep 30 2007)
    I had my first seizure when I was 4 years old (I’m now 33) and it was a grand mal seizure where I was trying to swallow my tongue. For years after that leading into adulthood I had petit mal seizures that were controlled by Phenobarbitol. I stayed on that with no problem until my body developed an immunity to it and I then went to Tegretol. After a year or so I went to Carbatrol for a change of release I believe. That seemed to lose effectiveness a little so I now take Depakote. [more..]
  • Grand Mal Seizure - by Wendy Smith - (Mon, Sep 24 2007)
    I was at work on Friday and was getting hungry. I drove to Burger King to get lunch. When I went to look at the menu it was all running together,so I shook my head to look again and it was still happening. I turned around to see if anyone was behind me and started to fall. [more..]
  • Meningitis caused Epilepsy - by J Hanes - (Fri, Sep 14 2007)
    Do you have epilepsy caused by Menacocis (bacterial Meningitis)? I had it as an infant, and now suffer from partial seizures This side affect has been with me all my life (epilepsy) and even though I have tried several medications and currently take both Keppra and Neurontin (at low and high dosages to test them), [more..]
  • Lip Droop=Partial seizures? - by Amy - (Thu, Sep 13 2007)
    All of this began in May when I had a lip droop and an eye droop. It was not Bell’s Palsy because I would also have duck lips or a twitching nose. I had no control over my face. It came back and my CT was fine. [more..]
  • ?confusion? #1 - by Ronald Warren - (Wed, Sep 12 2007)
    I was diognosed with epilepsy when i was 14. My first seizure occured while i was sleeping over at my Aunts house. I was up all night playing video games and drinking mt. dew. The night before that i was up playing video games and didnt get much sleep. I recall playing the games and then not being able to fall asleep. [more..]
  • My story with epilepsy - by Julie - (Tue, Sep 11 2007)
    My name is Julie, I was diagnosed with epilepsy when I was 14. Although the doctors think I was born with it. It started out to be only petite mal and with in about 2yrs I was haveing partial complex. They some what got them under control. Until I was in a car accident when I was 19. [more..]
  • Dreaming - by SD - (Tue, Sep 11 2007)
    I was diagonosed with Epilepsy in 1997. I have been on anti epileptic drugs from then on.Though it was controlled upto a certain extent but it relapsed only last year. Doctor increased the dosage and there after I am ok. For last few days I was observing that I have been dreaming quite a lot during sleep. [more..]
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