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My son’s Epilepsy Diagnosis


by: David on Sun, Jul 29 2007

My son has been dealing with complex partial siezures [seizures] for over ten years. He has the VNS implanted and it did help, especially during a siezure [seizure]. He has now developed, what has been described as a focal siezure, so now he suffers from both the convulsive and the focal siezure. The focal siezure, which is a severe twitching of his right arm, doesn’t stop and the doctors are unable to even see this siezure during an EEG. I’m at my wits end with the system, when there doesn’t appear to be any help. I am also wondering if this focal siezure is being triggered by the VNS, but the doctors didn’t want to shut it down to test it, while we were there. He has a separation in his brain, on the front left temporal lobe, due to a trauma of falling off a ride at the amusement park in Santa Cruz. I need suggestions from anyone that may have ideas, seeing how the doctors are running out of ideas. Feeling helpless in Ca.

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Comments
  1. Sun, Nov 04 2007
    I can only imagine your frustration at this point. Having had epilepsy for 40 years, I can only suggest that you write to every medical school in the ...Read

July 2007

  • My son’s Epilepsy Diagnosis - by David - (Sun, Jul 29 2007)
    My son has been dealing with complex partial siezures [seizures] for over ten years. He has the VNS implanted and it did help, especially during a siezure [seizure]. He has now developed, what has been described as a focal siezure, so now he suffers from both the convulsive and the focal siezure. [more..]
  • 1 1/2 yr. old Male - by Megan - (Sun, Jul 22 2007)
    This is just happening with my cousins young son who is abt. 1 1/2 yrs. old. Last week he was sleeping and had a fever which spiked suddenly and he started having a seizure She called 911 and they had to resuscitate him. He was admitted to stay in the hospital a day. When he was being released in the ER, he started seizuring again. [more..]
  • Epilepsy - by Jennifer - (Tue, Jul 10 2007)
    My name is Jennifer. I had seizures when I was a little girl. Then in February of 1996 my parents took me to a hospital in Detroit and I had brain surgery there. [more..]
  • my story - epilepsy and relationships - by William - (Tue, Jul 03 2007)
    Hi I am 34 years old. I have had right temporal lobe epilepsy or been diagnosed for ten years. I take depakoate er , and it helps alot .I do suffer from horrible behavior problems though and it is very hard for me socially. [more..]
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