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Living with Epilepsy/Seizures

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Sturge Weber Syndrome
by: Charlotte on Mon, Jun 25 2007
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I have a daughter named Tracy who was born with this dissorder 30 yrs ago. It has been a struggle for her, but she is a remarkable person. She has had to endure a lot, but has a personality that everyone who comes in contact with her loves. She has had several surgerys. She has the port Wine Stain. She functions on a 5 yr. old level due to the sizures she started having at a early age. She was given the prognosis at birth, of only living to be 2 yrs old, and she has made it this long. I only hope and pray that she will be with us for many more years to come. She was definitely a gift from God to us. Thanks to all the Doctors, Hospitals, and her care giver Gloria, who has been there for her and my family through these difficult years. I can not thank them enough.
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June 2007

  • epilepsy and undignosed seizures - by vanessa - (Thu, Jun 28 2007)
    my sister at the age of 11 had a brian hemorage resulting in her having to have several brain surgery operations leaving her with a plastic skull. she was then diganosed with eplipsey [more..]
  • Epilepsy - by SACS - (Tue, Jun 26 2007)
    I was about 6 or 7 when I was diagnosed. I had a Gran Mal seizure in class. It had been very rough, with at least a one seizure a month. Very often many more. I was very self concious of this. [more..]
  • Sturge Weber Syndrome - by Charlotte - (Mon, Jun 25 2007)
    I have a daughter named Tracy who was born with this dissorder 30 yrs ago. It has been a struggle for her, but she is a remarkable person. She has had to endure a lot, but has a personality that everyone who comes in contact with her loves. [more..]
  • Driving and seizures - by Terri - (Fri, Jun 15 2007)
    My name is Terri. I had my first seizure when I was 21; and then a 2nd one about 2 months later; after seeing a doctor, I was diagionised with a seizure disorder. [more..]
  • MY STORY - by radha - (Mon, Jun 04 2007)
    Hi i am 27 year old lady. I want to share my story. Ater some days, doctors told me i have non epileptical seizures. [more..]

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