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Living with Epilepsy/Seizures

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Mom


by: Melody on Mon, May 21 2007

I’m a 12 year old girl, and my mom had epilepsy She was 39, and had it every since she was born. She had horrible health. She was a smoker and all she ever ate was vanilla wafers and coffee. She eventually became pale and thin.

She had a neurologist who was giving her this medication called Tegritol, which she already knew was the wrong medication. He was testing her for the correct medication, though, everytime she came in. He was blaming her for not taking her pills like she was supposed to, even though she tried to tell him he was wrong. My mom started having anywhere from 2-5 seizures a week, instead of her normal once a month. Her neurologist was supposed to recommend her to a hospital. But in his letter, as we found out, he was calling her a liar and describing her as if she was crazy. When we finally got an appointment for a hospital, it was too late. Three days before the appointment, she died. She was only 39.

There a lot of factors leading to this result, her health, her medications, and so on. As I later discovered, only 10% of Americans who have epilepsy ever die from it. So, please, if you or a loved one has epilepsy make sure that NONE of this happens. So much has happen to me and my two other sisters. My father, who was 51, eventually had a heart attack out of stress from my mother’s death. He died 3 months after her, leaving us in such a mess. Like I said before, if you or a loved one has epilepsy watch out for this, I, personally, don’t want this happening to anyone else.

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May 2007

  • My First Seizure - by NT - (Mon, May 21 2007)
    On Wednesday, May 16th, 2007 I had experienced my first seizure! I was with my boyfriend at his guardians house. [more..]
  • Mom - by Melody - (Mon, May 21 2007)
    I’m a 12 year old girl, and my mom had epilepsy. She was 39, and had it every since she was born. [more..]
  • My Story - by Dara - (Mon, May 14 2007)
    When I was about 17 and 18, I started to feel a heat sensation all over my body, a deja vu feeling, see flashes, and I would be out of it, and sometimes I could not remember things. [more..]
  • 70 days in jail for DUI charges resulting from seizures - by JKM - (Mon, May 07 2007)
    I had two seizures while driving, one 2/11 and the other one 2/12. Was charged with DUI both times. On 2/12 I wrecked my Envoy and totaled it. [more..]
  • Learning to accept epilepsy - by Kim - (Wed, May 02 2007)
    I was 27 years old when I had my first seizue. I was devistated. I could not understand what was going on. I questioned, (why now at 27 years old)? I’d been in good health all my life [more..]
  • Epilepsy and Pregnant - by STEPHANIE - (Wed, May 02 2007)
    About six years ago, I had what you would call a grand mal seizure Since then I haven’t experienced another one, but I am still having what the dr.’s call light seizures. [more..]
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