Coping With EncephalitisThis section is a place to share stories about Coping With Encephalitis. Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download AMBERS STORY On 6-30-09 my girlfriend amber went to er complaining of stomach pains,she checked in waited for 9 hrs before they admitted her drs still didnt know what was wrong with her she said that she had really bad stomach pains then they diagnosed her as having pancreatitis i didnt realize that it is very painful. They treated her for that she started to not be able to get stabilized temp was high all the time she was on a ton of meds then she ended up with pneumonia Treated her for that needless to say amber has high blood pressure she wasnt eating good she also just quit a metadone clinic 2 weeks before she got really sick then 3wks while being in the icu drs say her brain started to swell they did all kinds of tests still they dont know why the swelling occured They say it was severe,at first drs basically said her life was over, we were devastated, like what do you mean her life is over, when we brought her in here she didnt look the way she does Now i was torn apart i just couldnt believe this and today it baffles me She never had any problems of that nature,now its going on 6wks in icu her eyes opens sometimes she has a tube down her throat,she just blew up all this fluid in her it just hurts to see her that way a week ago her mom was gonna take her off life support and i continued to tell them that its just way to early give her some time drs were telling them no matter what she could never recover which is wrong i think, she did start to turn things around just a little drs prognosis changed somewhat now they say she may recover but they dont know how much I continued to tell them this is in gods hands drs some drs are gifted but they are not god, we have 2 children 5 and 19 months my whole life has just been turned upside down i cant sleep its just a terrible feeling in my gut,and the hurt and pain just never stops i just pray for her everyday still They have no idea why the swelling happened i just cant believe this she just lays there her eyes open occasionally she resonds sometimes when you call her name but her eyes are off Track life has just changed in all areas I believe god has a plan for all this I’m just glad she is still alive and has a chance her children have not seen Her for such a long time their plan now Is to insert trach get some fluid off He body and just hope for the best she will be going to a long term program. why didnt god just take her in the midst of all this maybe he has other plans. I just pray all the time for her this is gonna be a long ride and i know its gonna be a lot of ups and downs but god is gonna carry us. I know there are people out there in situations like mine just never give up And put it in gods hands , the word miracles , wouldnt be any good if they never happened. Thanks darren in mass Comments
August 2009
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