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Living with Dystonia

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Cervical Dystonia
by: MCB on Wed, Jun 03 2009
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For 15 years, regular botox injections in my neck gave me relief for a rapidly degenerating life. I lived virtually symptom and pain free.

But after a severe series of epileptic seizue falls, the dystonia has become aggressive and is affecting a different set of muscles and causing more painful and digressive symptoms.

My fight with dystonia is not over as my doctor’s and I explore new and more effective ways of treating this never ending disease.
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June 2009

  • Laine - by LNB - (Tue, Jun 09 2009)
    I have had cervical dystonia for over 12 years. Though I tried several oral medications and Botox injections, 1,800 mg of Neurontin divided in three doses per day, was the only thing that worked. [more..]
  • My 5 Year Old son with dystonia - by T L Blessington - (Mon, Jun 08 2009)
    It started Dec 2008. Twisting to the right and right arm completly twisted and then screaming. This is every time he goes to sleep. [more..]
  • Cervical Dystonia - by MCB - (Wed, Jun 03 2009)
    For 15 years, regular botox injections in my neck gave me relief for a rapidly degenerating life. I lived virtually symptom and pain free. [more..]
  • spasmodic torticollis - by Donna - (Tue, Jun 02 2009)
    I lived with this form of dystonia for 15 years before my diagnosis. [more..]

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