Living with DystoniaThis section is a place to share stories about Living with Dystonia. Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download Secondary Dystonia 
Hi,I have several illnesses with the major problem being Parkinsons. I started noticing the dystonia approx 18months ago, it presents by causing spasms in my mid to lower back which progressively twist me up and make walking very difficult, even dangerous and I invaribly get frozen and need assistance to sit. It happens in the mornings (with one exception)usually about ten minutes after I get up and lasts for upto an hour. I know that this is most probably related to the Parkinsons but I haven’t found another PD person who experiences it. I am often left feeling quite drained and very wobbly as it puts a lot of strain on my knees and upper thighs. Can anyone relate to this?
May 2009
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