Living with Dystonia

MY BATTLE AGAINST DYSTONIA
Journal Entry, March 8, 2009

The convulsing never stops. The misery continues each waking moment, but I know there must be thousands all over the world baffled by their constant, uncontrollable bodily movements. Doctors are baffled, prescribe muscle relaxants to no avail.

People stare and our friends and family don’t understand this endless trial. For people of faith, this is a trying test as we cry out to God daily for relief. I can’t sleep and I pray that I’ll not wake up.

It started around March of 2006 and a month later, my doctor said I had Dystonia. I’m a professional performing musician, guitar player, artist and writer. My work and calling all entail speaking, singing and working with my hands.

Jerking my mouth open while hitting a high E note one day while driving was the beginning of my agonizing trial. Crack. I thought little of it at first, but a few weeks later, an unfamiliar, contraction moved my throat by the month’s end getting so bad my tempero-mandibular jaw joints became an inflamed lump on my right side. By mid afternoon, my jaw and lower face were exhausted by the constant movement. Pain and anxiety were my new companions. People would stare as my face contorted unattractively and uncontrollably.

This battle with Dystonia has been the most compelling and daunting of my life and has diminished the quality of my life more than anything I could have ever imagined.

Hay fever and fatigue plagued me since a young girl, but a bout with chicken pox 25, set off recurrent bronchial infections. In 1992, I was diagnosed with Lyme Disease which required a full month of intravenous IV Rosephin. The Lyme came back several months later. This time, a full month of Amoxicillin was prescribed. My doctor at the time neglected to inform me about pro-biotic for my gut health. Candida fungus proliferated .for two years before getting it under control. My lower body weight gain and clinical depression robbed two years of my life. I managed to forge forward, with my outreach ministry and even recorded my first CD, “I’ll Fly High” in 1996.

Years later, after incredible hardship, unemployment and poverty, I met and married my soul mate who also suffered chronic health issues. We both set out to sleuth how to regain our health.

I was continually depressed to find my health continually diminishing despite my devoted service for 26 years of serving Jesus Christ, both through my music outreach and ministry exploits and pure love for what He did for me. The Bible said I was prosperous and healed! I wouldn’t accept being incapacitated by poor health and disease and couldn’t understand why people accepted doctors death sentences every day! Main stream medicine’s tether people to dangerous pharmaceuticals for life, but there are other options. God gave us herbs and natural supplements for our healing and the body is so designed to heal itself.

This new malady, Dystonia has entailed serious research each day. My husband recommended I read an astounding book, “Detox or Die,” a resource manual about detoxifying the body from environmental toxic overload. She suffered from unexplained illness for many years and doctors were unable to diagnose why. The book touts detoxifying the body through sweating in a FAR sauna. Sweating is the body’s way of purging toxins out of the skin’s sweat pores.

A master herbalist touts detoxifying the body through colon cleaning and purging the body with kidney and liver flushes. When the detoxifying organs are sluggish and overloading with poisons and debris, the body cannot recover and heal. Since my body continued to show effects of some sort of neurological malfunctioning as well as my thyroid and adrenal glands were sluggish and depleted. I had to discover what was strain on all my organs. Tests confirmed nothing unusual.

I continued to pray for God’s wisdom and diligently researched probable causes of my neurological malady. The more information I found, the more I realized I was overloaded with accumulated toxins. Mark urged me to get a hair analysis and I was relived to finally find that my problem was heavy metal and mercury overload! This shouldn’t have surprised me.

Over the years and through many illnesses, (including carbon monoxide poisoning) my body had become saturated with an arsenal of highly damaging toxins and chemicals, including, Sucralose from Splenda and Aspartame from NutraSweet, both artificial sweeteners, told about in another doctor’s book, “Sweet Deception.” These substances are now found in thousands of food products. I discovered my health nemesis to be mercury toxicity from a dental filling, heavy metal poisoning! I wondered how many other people with neurological disorders was suffering needlessly and were doctors seeking this issue? Mercury and heavy metal toxicity affected even babies and little children through Autism Tourettes Syndrome, neurological maladies and chemicals from the mother’s placenta! The elderly suffer from Alzheimer and Parkinson’s Disease. All these are related to toxic and heavy metal overload!

I want to offer hope by sharing my pain, incredible suffering and misery and to remind you that God has a beautiful plan through His grace and mercy. My calling entails not only music and art, but mainly to champion victims and underdogs imprisoned by their own bodies and chemical emotional disorders. Natural, alternative and holistic medicine have already discovered cures and treatments for symptoms and illness once though of as incurable. Do not accept a death sentence.

I’m presently detoxifying through a metal/mercury detoxifying program. My doctor is amazing and has researched and documented the effects of mercury, heavy metal and chemical accumulation on the human body that removes and mobilizes mercury out of the body. Chelation is the only way to remove mercury. Through sauna use, chelation, and liver kidney flushes we can restore our bodies into wellness.

As I compose this blog/essay, I’m in great discomfort, but just the thought of someone seeing the light is worth this suffering! I’ve been in our FAR sauna almost every day for the past three weeks in the hopes that I’ll soon feel the constant mouth and throat movement and jaw pin dissipate. It’s interfered greatly with even getting restful sleep and has greatly inhibited my enjoyment of my life, creativity and even my desire to live! By3 pm, the muscles of the mouth, neck and jaw have moved so much that I’m totally drained and only desire to be completely unconscious.

I’ve lost the desire to eat, socialize or engage in any of my former joyful hobbies or activities. I don’t see how other Dystonia victims are even enjoying their lives. I can’t. The muscle relaxants and Ibuprofin do not work. So all I can do is suffer and hope that the next morning I will wake up to less throat muscle movement.

The only thing I can be grateful for is now having the knowledge of how to remove these poisons from my body. Sadly, since I’ve been around for a few decades, my body has absorbed a lot, so it may take a while to get some relief. Relief is the main thing I need. How many others are suffering from being drained from movement disorders and a diminished lifestyle?

Because of this horrendous condition, I’m on an impassioned journey to champion victims and underdogs to gain the knowledge. To help them find the causes of their diseases and to help their bodies to heal. Every person should have the right to enjoy their life and walk in the very best that God has called them to. Our own leaders and governments have misused their power to hinder our destinies through their misuse of industry and manufacturing, (pouring poisonous chemicals and wastes into our water and environment), the FDA, (allowing all sorts of dangerous substances, dyes, chemicals, and even genetically engineering our food, cleaning and health-beauty aids-supply, along with a host of other damaging substances like dental amalgam fillings in people’s teeth!

This knowledge should be made public for all. So much needless suffering and death. I pray this blog will awaken you and set you on the path to healing, recovery and wellness. It will be a long, difficult and tedious journey, but if you takes Christ’s hand, He will lead you into wisdom, knowledge and love. God bless you and feel free to contact me.