Living with DystoniaThis section is a place to share stories about Living with Dystonia. Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download Living with hemi-dystonia 
I went to 3 different neurologists - one thought I had MS - one thought I had Lou Gehrigs disease and then finally was unofficially diagnosed with hemi-dystonia. I had MRI’s, spinal taps, many, many blood tests, etc. I lost my hudband to Lou Gehrig’s disease and now only have Medicare (I am only 53 years old). I lost my job and now I am basically housebound. I think i am becoming immune to the medication I am taking. My neurologidt quit - so I luckily got the neurologist my husband had so she knows all about what I have. My question is - has anybdy become unsteady on there feet? Have you fallen because of it? Is there anything to do for this? Please HELP!!!!!!
May 2008
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