Living with Dystonia

For the past 7 years I have lived with a condition that no doctor could give me a diagnosis that is untill this past week.
It all started one morning when I awoke late with the symptoms of what appeared to be a stroke I was hospitalized and was subjected to numerous tests such as MRIs,MRAs, EEGs, blood tests by the doctors and then to have them all come back normal. I have seen several specialists to have them all tell me, “I don’t know what is wrong, it could be migraines or even epilipsy [epilepsy]. I even had one ask me, can you make this happen on your own?”

I have been on many medications all with no results. I began to think that I was going insane, was it all in my mind.
My face; specificly the right side of my mouth, jaw and tounge, distorted and never knowing when it was going to happen. The only time I know it was going to happen was when I got a funny taste in my mouth and then feeling very tired afterwards. I could see the frustration on my family, is mom okay, is my wife going to have to endure this permantly? The looks from people I came across. Not knowing when or how long it would last. I was even on disability leave because it was affecting my job.
It was just only this week when I saw another doctor and she proceeded to tell me that I think you have symptoms of a migraine that is untill she saw me actually have an episode that she finally gave me a name to what I was experencing…you have facial dystonia.

Your mouth, jaw, and neck constricts and affects your tounge. THANK YOU I said, it’s not in my mind, I actually do have something wrong and there could be a possible cure for it.

If there is anyone else that suffers from facial dystonia please let me know.
Thank you for taking the time to read this article.