Living with DystoniaThis section is a place to share stories about Living with Dystonia. Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download dystonia 
I have had dystonia for 9 months. I can not stop twitching my neck and i cannot stop my lower jaw from clapping to my upper jaw. My primary dr. prescribed flexiril and ivproffin, neither worked. I went to a neck specialist for another exam where i was diagnosed with tics/dystonia, I was prescribed with Bacolfren and it does not work. However the dr. referred me to a neurologist wed.oct 2 -07 for botox. My situation is worse than ever, hopefully the botox will work.
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