Living with DementiaThis section is a place to share stories about Living with Dementia. Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download DAUGHTER MY MOTHER HAS DEMENTIA, I DO NOT THINK IS ALZHEIMERS, SHE HAS MINI STROKES IN THE BRAIN AND SHE IS THE 5 SYBLING TO HAVE THE SYMPTOMS. 3 OF THEM WERE/ARE IN NURSING HOMES SO WE CAN NOT CHECK IF THEY HAVE THE SAME SYMPTOMS BUT HER OLDER BROTHER, A PHYSICIAN, WAS ALSO CARED AT HOME. BETWEEN COUSINS WE HAVE DISCUSSED THE DAILY PROBLEMS AND LOOKS LIKE THEY HAVE SIMILAR BEHAVIORS. MY MOM WAS A MATH TEACHER, A SUPER INTELIGENT PERSON AND FULL OF CHARACTER AND PERSONAL STRENGTHS. NOW SHE HAS CONSTANT FEAR AND CRIES FOR HER MOTHER ALL DAY LONG. THE PSYCHIATRIST HAS NOT BEEN ABLE TO FIND A DRUG TO HELP HER. I CAN NOT BELIEVE THERE IS NOTHING THEY CAN GIVE HER TO CALM HER DOWN. THE NEUROLOGIST DIAGNOSTED HER WITH LEWIS DEMENTIA. SHE TAKES SEROQUEL AND TEMAZEPAN AT NIGHT AND THAT CALMS HER DOWN BUT I THINK SHE IS GETTING USED TO THEM BECAUSE LATELY SHE IS WAKING UP IN THE MIDDLE OF THE NIGHT. DURING THE DAY SHE TAKES CLONAZEPAN AND THAT DOES NOT HELP HER AT ALL BUT THE PSYCHIATRIST DOES NOT BELIEVE ME THAT SHE IS NOT RESPONDING TO THAT MEDICINE AND HAS PANIC TO BE ALONE AND FEAR AND AXIETY AND EVERY AWFUL FEELING THAT YOU CAN THINK OF. MY MOM’S OLD MEMORY IS OKAY SOMETIMES, SHE THINKS I AM ONE OF HER SISTER AND SOMETIMES SHE DOES RECOGNICES MY DAD. WE CAN CARRY A QUESTION AND MAYBE AN ANSWER SOMETIMES, AND SHE KNOWS THERE IS A PROBLEM WITH HER MIND BECAUSE SHE ASKS GOD TO TAKE HER ONCE IN A WHILE. SHE KNOWS SHE HAS ANXIETY AND TELL US THAT SHE CAN NOT CONTROL HER FEELINGS OF FEAR. THAT IS WHY SHE CALLS HER MOTHER AND SYBLINGS ALL DAY LONG. SHE ALSO NEEDS SOMEONE TO HOLD HER HAND AND BE THERE CONSTANTLY. SHE USES THE SAME WORDS LIKE A BROKEN RECORD AND HAVE HER EYES CLOSED MOST OF THE TIME. SOMETIMES SHE SCREAMS AND THE FEAR REFLECTS ON HER FACE, WE CANNOT CONTROL HER AND IT IS EXTREMELY DIFFICULT TO HELP HER COME OUT OF THAT SITUATION. I AM LOOKING TO SEE IF ANYBODY HAS A SIMILAR STORY AND MAYBE CAN LET ME KNOW OF WHAT PRESCRIPTION THEY ARE USING. MY MOHTER HAS USED ATIVAN, REMERON, EFFEXOR, XANAX AND HAVE HELP FOR A LITTLE WHILE BUT I THINK THE DOSAGE HAS NOT BEEN ENOUGH FOR HER PROBLEM.
December 2007
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