Living with Chronic Fatigue Syndrome

Aug. 15 2008 I was on the couch for 3 days with something that felt like the flu (but no other signs of flu, just TIRED). That was the beginning. Different things have happened since. It seems to be affected mostly by DOING things. Activity. I can’t seem to do things without having to pay for it for weeks or so. I changed doctors after being told it was anxiety or in my head. I finally found a new doctor who acknowleges that CFS exists. He said it may be Fibro. but I tend to think CFS.

It’s so confusing trying to figure it all out and what it is. My husband is NOT supportive and sides with my old doctors. THAT’S is probably the hardest part. I envy people who have mates that support them. It really hurts emotionally to not have that. I could write a lot about what’s been going on because I really want to know if others have what I have. I fall into some of the symptoms I’ve read but then have some that aren’t written.

I know I’m not alone because my older sister has had CFS for about 15 years. She use to be one of the most active people I’ve known. Biked across country, hiked the Appalachian Trail, canoe club,… and now lucky to walk around and do normal stuff. She has her okay days but can’t do any of that anymore. It’s sad. I’m not as bad. I’ll have bad weeks and then start to feel better like I’m over it, then do something that has abit of activity with it boom, back to fatigue, soreness, dizzy, nausea, recently started feeling some numbness in certain areas (that’s the new thing I’m looking to see if anyone has had).

Okay, I’ll stop now. If you’re reading this have this, good luck hang in there… It’s frustrating confusing and the question always coming up “What DO I have????”