Coping With Charcot-Marie-Tooth DiseaseThis section is a place to share stories about Coping With Charcot-Marie-Tooth Disease Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download Charcot Marie Tooth Disease 
I was dx’d wtih CMT at the age of 40. I have read everything possibly out there about the disase that I could find. It appears to be getting worse as the days go on. I have so much pain in the hands, knees and feet. It seems to be worse when the weather is bad (ie: rain). I have been tested for RA which was negative. I had to educate my primary DR. on the disease. I really feel isolated from the rest of the world with CMT I would like to speak with other ppl that have actually been dx’d wtih CMT to see if they are experiencing the same symptoms as I am. I am a member of CMTA, however, they do not have ANY support groups in the state of MD. I am willing to get one started if I knew of other ppl in MD that had it.
September 2009
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