Coping With Charcot-Marie-Tooth DiseaseThis section is a place to share stories about Coping With Charcot-Marie-Tooth Disease Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download CMT 
I am 51 and was diagnosed with CMT about 12 years ago. My mother was in a wheelchair, my brothers legs are tiny(just bones), my half brother and his 18yr old daughter are both in a wheelchair. My oldest son has it also. I am going through such a hard time with it. I have lots of muscle in my legs but I have severe pain. My legs hurt all the time. My muscles are wassting away in my feet. About every 4-6 weeks it seems like I go through a period where my legs just won’t calm down at all. I t drives me crazy. I am on hydrocodone but does nothing anymore. I am now also on Tizanidine HCL. It makes me so tired I can’t take it during the day . I work 2 jobs (sometimes 3, 3 months out of the yesr). I can’t afford to quit. All my jobs are on my feet. I’m just miserable and don’t know if anyone can help. Sometimes I just wish I could cut them off at the knees. That sounds horrible but thats’ how bad they hurt Tamara
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