Coping With Charcot-Marie-Tooth Disease

I am a 43 year old female who was diagnosed at 3. I had both feet operated on when 12 to correct hammer toes and drop my arches. Presently on disability. Live in Toronto Canada. The last 5 years have been hell. You wont believe it!!

It started with knees dislocating. I was operated on and doc said 6-8 days recovery. Ended up 16 weeks in a hospital bed in living room. Became impacted and dug out. Kids changing MY diaper. Then developed blood clots in the main artery in my groin. Afraid to sleep because of pulmonary embolism.

Then last September my 16 yr old daughter (also CMT) gets hit by a car while walking to school. She has 2 fractures T11 and L5 plus deep tissue damage. She misses 6 months of school and her CMT has progressed as a result of the trauma to her back. Lets see, after that my tibia fractured and i ended up back in cast from hip to toes for 3 months. Oh and yeah the blood clots came back and I am now on Warfarin for life. Cant take my anti inflamatory meds anymore because of the Warfarin.

Docs tried new med for pain called Zytram. It makes me throw up and feel like crap so I am back to square one. I have come to the realization that I must have been a serial killer or something in a past life LOL. Why else would this all be happening. But remember….”That which doesn’t kill us, makes us stronger”.