Coping With Charcot-Marie-Tooth DiseaseThis section is a place to share stories about Coping With Charcot-Marie-Tooth Disease Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download Severe weakness after pregnancy 
I am 40 years old and was diagnosed with CMT when I was 16. I had reconstructive surgery done on both feet when I was 30 to lower my high instep and help with my poor balance. When I was 35 I had a beautiful daughter and noticed almost right away a rapid onset of symptoms including: severe numbness in legs and feet, bladder weakness that never improved, and increased weakness in both feet. In the last 2 years I have been turning my right foot and ankle out so badly I can barely walk and arthritis has progressed into the joint. I have been told by an Orthopedic Doctor here that fusion of my ankle would only cause more arthritis and I would need at least 5 surgies to correct all the damage. I have not been able to find any Doctors that can help with this proglem and I am so scared I will lose my ability to walk especially being a single parent with a young child.
October 2008
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