Coping With Charcot-Marie-Tooth DiseaseThis section is a place to share stories about Coping With Charcot-Marie-Tooth Disease Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download My entire life and family 
I was diagnosed with CMT at the age of 10. My Mom and Aunt always had a strange walking gait. They said noone ever gave them a “name”. I had my first surgery when I was 11 to extend my tendons in my right foot. I never could run well. But I was always active! At the age of 22 I had another surgery and then many more. I never wanted to be slowed down and have fought it all my life. I have 3 children and I manage group homes for people with disabilities. My brother had this disease and all 5 of his children have some of it. My 2nd child may have , but has not been tested. My problem is that I don’t have a problem until I have an injury. My family was in a horrific car accident in 2006. I broke 2 bones in the side of my foot. I have nothing but constant nerve pain. I never wore a brace on that foot before, but now I do. I have slowed down tremendously and it is really bugging me. I don’t do family things like I used to. Has anyone had alot of nerve pain, because I am sick of getting Cortizone shots.! But I can still be thankful for what I have done in my life, but I miss doing all those things!
September 2008
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