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Coping With Charcot-Marie-Tooth Disease

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Steve, 51 diagnosed one year ago, but progressing quickly
by: Steve Mazon on Mon, May 05 2008
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I was diagnosed with CMT4 about 1 year ago, in one winter I went from a strong #2 handicap in golf, to not having the strength or balance to swing a club. So far it’s affecting my feet, legs, hands and arms, I have no balance at all. I’m being fitted with braces for my legs to help with my balance and mobility, and I’m told that I will be in a wheel chair in possibly 5 years. I really don’t want to let this get me down, I told my wife that I’m gonna play golf as much as I can even if I have to velcro the clubs to my hands. I’d like to know more about CMT4, I haven’t heard from many people who was diagnosed at a later age or who has this type of CMT


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May 2008

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