Coping With Charcot-Marie-Tooth DiseaseThis section is a place to share stories about Coping With Charcot-Marie-Tooth Disease Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.
You may also Help others by sharing your story. In honor of National Cancer Survivors Day on June 1, 2008, we asked you to share your stories about surviving cancer. Read the inspiring stories we received or share your survival story and help others in the fight against cancer. To quickly access health information from your website's browser, download Steve, 51 diagnosed one year ago, but progressing quickly I was diagnosed with CMT4 about 1 year ago, in one winter I went from a strong #2 handicap in golf, to not having the strength or balance to swing a club. So far it’s affecting my feet, legs, hands and arms, I have no balance at all. I’m being fitted with braces for my legs to help with my balance and mobility, and I’m told that I will be in a wheel chair in possibly 5 years. I really don’t want to let this get me down, I told my wife that I’m gonna play golf as much as I can even if I have to velcro the clubs to my hands. I’d like to know more about CMT4, I haven’t heard from many people who was diagnosed at a later age or who has this type of CMT Comments
May 2008
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