Coping With Charcot-Marie-Tooth Disease

well i was diagnosed with this about 2 yaers ago. I had the foot deformities for my whole life but the other symtoms started when i fell of the chare then off the stage. I ended up hurting my knee. it took to long for it to heel so they did some tests on me and ran my family history and gave me an EMG. my nerves were so bad they thought the machine was broken but thats how bad my nerves are.

I was so scared i knew nothing about this deseas i never even herd of it. but to help my self and other people i decided to do my senyor project on it. i want to do public awaerness out ther and do a fund raser to help MDA, people that do not have enough money to go to the docter or get suergery or any equitment they cant affored. and just last week i found out my 14 month old daughter has this to but since i did the reserch on this disease and i know what my daughter and i are up agenst we can totaly handal this.Im alittle nervice because i am having alot of problems right now and it is hard to cope with school,a 14 monthold baby, cmt and being in and out of the docters.