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Coping With Charcot-Marie-Tooth Disease

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sues story
by: susan on Wed, Dec 05 2007
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hi im sue i have cmt foud out at 40 i have passed it on to my daughter and grandson age6 hes showing signs already ive had 7 operations on my ankels ive been told by adoctor that i have cmt in my voicebox: handsalso my digestive system,im on awalker for mobility my husband is my full time carer i have good and bad.

does any oneelse have cmt in same parts of body like me .my hands are going strange ,my writing is very poor now,my family has been tested,8 member have cmt whilst i some times find it hardiam coping i was hoping to find some type of easy treatment especially for my grandson maybe some day it will happen.does any on haveany advice on any vitamins or medication that might be available to cmt suffers.thank you sue


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  1. Fri, Mar 07 2008
    Hi, My name is Delia I have been diagnosed with cmt disease about 4 weeks ago. Just a little advice go and do a search on diet for people with cmt ...Read

December 2007

  • charcot marie tooth disease - by april - (Wed, Dec 26 2007)
    hi i would like to know how you deal with the pain of this disease? I have it and i have a very hard time dealing with it. [more..]
  • sues story - by susan - (Wed, Dec 05 2007)
    hi im sue i have cmt foud out at 40 i have passed it on to my daughter and grandson age6 hes showing signs already ive had 7 operations on my ankels ive been told by adoctor that i [more..]

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