Coping With Charcot-Marie-Tooth DiseaseThis section is a place to share stories about Coping With Charcot-Marie-Tooth Disease Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download CMT1A 
I am 37 years old and diagnosed with CMT 1A 4 years ago, after continuous ankle/foot injuries and deformities. It has been progressing faster than I ever expected (not decades as typical). My feet bilaterally are extremely pes cavus deformed with hammering of my toes. It is most recently seriously affecting my upper extremeties causing my hand to periodically stay in a clenched position on the pinky side. What really has me wondering now is my feet are almost in a fixed state ie. tendons locked up or major contractions. I recently had a NCV that showed the nerve damage in all my extremeties. Has anyone experienced their feet in a fuzed like state, with little to an absent up or down movement? I am not sure if this is typical of the disease going from the weakend foot (previous) to the lack of movement now experienced. I wish all you living with CMT the best and appreciate anyone who can educate me more on our disease.
November 2007
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