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Coping With Charcot-Marie-Tooth Disease

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New Member is Neuropathy Activist
by: Lisa on Wed, Sep 05 2007
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Call me a dedicated daughter and niece because I lost my mom 20 mos. ago, when she became bedridden from complications from PN [peripheral neuropathy] and CMT [Charcot-Marie-Tooth disease].

Immediately after, her brother’s own PN and CMT got worse, and he’s battling these crippling and debilitating nerve diseases and disorders.

I’ve started a website to raise awareness for PN and CMT

No child should witness a parent in extreme pain - and feel totally helpless.

Thanks for your time, cooperation, and understanding.

Sincerely,
NervyLisa
GET NERVY!
Thank you.
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September 2007

  • doing well - by dobes - (Thu, Sep 20 2007)
    I was diagnosed with CMT at 13 and had 7 operations on my feet to fuse the large bones and remove joints from my curled-up toes between the ages of 13 and 16. That was difficult, but now, at 50, I can still walk fairly normally though my lower leg muscles are atrophied and I have lost some feeling in my lower legs. [more..]
  • charcot marie tooth disease - by simone - (Fri, Sep 14 2007)
    i was diagnosed with cmt 6 years ago and have really noticed how much it has really started to affect me things like standing in 1 spot seem to be such a chore for me these days im only 21 and theres so many things that i want to do but my feet are the things stopping me in my quality of life each day [more..]
  • New Member is Neuropathy Activist - by Lisa - (Wed, Sep 05 2007)
    Call me a dedicated daughter and niece because I lost my mom 20 mos. ago, when she became bedridden from complications from PN [peripheral neuropathy] and CMT [Charcot-Marie-Tooth disease]. [more..]

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