Healthcommunities.com, Doctors Helping People Online for Over 10 years Healthcommunities.com
Home Search SiteMap Contact Us Forum Store Physician Board

Coping With Charcot-Marie-Tooth Disease

This section is a place to share stories about Coping With Charcot-Marie-Tooth Disease

Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.

You may also Help others by sharing your story.

To quickly access health information from your website's browser, download
Healthcommunities.com's healthchannels toolbar.


My dear son’s incurable disease


by: Mjm on Wed, May 02 2007

Hi! my son has been diagnosed with CMT1 four years ago. He is now 8 years old and I thank God because he is attending to a normal school here in Japan. His foot has miraculously develop stronger, although his hands/grips are quite weak. I try to let him deal his life in a normal way just as how normal kids does because he doesn’t experience any pain at all yet. It is a great thing to share and know a lot of things about this disease as I didn’t have access before (computer).

Comment on this

Comments
    There are currently no comments.

May 2007

  • charcot marie toothe disease - by Danny - (Mon, May 28 2007)
    I was diagnosed with CMT when I was 42yr. and this was after I had open heart surgery. This disease has been very life altering for me as I can no longer work, and am now permanently disabled. [more..]
  • Confused - by A K - (Mon, May 28 2007)
    Hi, My husdand has suffered from CMT since mid teens. Over the years we have tried to gain info in relation to the inherant risk to our three (now adult children). However we have only managed to become more and more confused. [more..]
  • Sometimes we have it easier - by Heather - (Tue, May 08 2007)
    I was diagnosed with CMT around the age fourteen. I am now twenty three and have trouble with walking and vague sensation in my hands. [more..]
  • My dear son’s incurable disease - by Mjm - (Wed, May 02 2007)
    Hi! my son has been diagnosed with CMT1 four years ago. He is now 8 years old and I thank God because he is attending to a normal school here in Japan. [more..]
Archives:
  • 2008 March April May June September
  • 2007 April May July August September November December


    • The submissions from our site visitors do not reflect the opinion of Healthcommunities.com, Inc. (HC). The Content of HC's sites is intended for informational and educational purposes only, and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. HC does not provide medical advice. Never disregard professional medical advice or delay seeking it because of something you've read on an HC website. Always seek the advice of your physician or other qualified health care provider regarding any medical question or condition. (See also: Website Disclaimer)


    printer friendly versionprint thisemail to a friendemail this AddThis Social Bookmark Button

    Home