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Coping With Charcot-Marie-Tooth Disease

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Living with cmt (Charcot-Marie-Tooth Disease)
by: Darin on Thu, Apr 12 2007
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i am 18 turning 19 in july. i got diagnosed in january 2004. i have toe curling and loss of sensation through out my body. living with the disease is the hard part. I can barely get out of bed in the morning or even do daily things. I have had numerous surgeries. These include foot reconstructive surgery, carpal tunnel surgery in both hands. Soon i will be having the other foot done. i have to be wheelchair bound during the healing. i may have to be completely wheelchair bound. That will ruin my life. I love to work on cars and drive my car. If i am wheelchair bound it will be very hard to do these things.
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  1. Fri, Nov 09 2007
    Sorry to hear about the affects this terrible disease is having on you. Best of Luck Mark...Read

April 2007

  • Leg Pain Cures - by Winndy - (Thu, Apr 26 2007)
    My son has leg pain and he takes hot baths, uses heating pads and electric blankets to help with the pain. [more..]
  • 4 year old with CMT - leg pain - by ts - (Mon, Apr 23 2007)
    My 4 year old son was recently diagnosed with CMT type 1. He is constantly complaining of leg pain. [more..]
  • keeping your sence of humor - by PEGGY - (Sat, Apr 14 2007)
    I WAS TOLD I HAD CMT TYPE B 11 YRS AGO, BUT THAY SAY I PROBELY HAD IT SENCE I WAS A YOUNG GIRL. NOW MOST DAYS ARE VERY HARD FOR ME TO GET AROUND SO I JOKE ABOUT IT. [more..]
  • Living with cmt (Charcot-Marie-Tooth Disease) - by Darin - (Thu, Apr 12 2007)
    i am 18 turning 19 in july. i got diagnosed in january 2004. i have toe curling and loss of sensation through out my body. living with the disease is the hard part. [more..]

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