Living with Cerebral Palsy

when my daughter was 4 months old her eyes used to roll so bad that it scared to me to death and she couldn’t hold up her head by herself, she wasn’t able to do anything , but lie down on her back.finally when she was 6 months old doctor’s started to do tests on her, she had an eeg and a cat scan, the diagnosis was that the part of her brain that dealt with muscle movements weren’t fully developed and that over time maybe this would change

when she was 9 months she had to wear glasses then when she was 1 year old she had a muscle biopsy to rule out muscular dystrophy which she never had she was 1 year and a half before she could sit up by herself. when she was age 2 she had to have a walker to help her walk she saw a doctor from the iwk and that’s when he told me that she had hyptonia cerebral palsy when she was 4 years old she took her first steps all by herself.

she wasn’t able to be potty trained until she was 6 years old, she had no control over her bladder and bowels it took me one day and she never wet the bed. she has had struggles in school not with her work but with the other kids it’s worse now that she’s in high school the kids are so mean she has no friends, other than that she walks really good today, but you can tell when she’s tired she starts to stagger a little bit, she mostly now just has problems with her speech.

at first i hated god for doing this to me i kept asking why me what did i do wrong the doctors assured me that this was not my fault, now i thank god for giving me my daughter i could imagine life without her now, she is definitely my miracle baby because i was not supposed to get pregnant without an operation but i did and i’m very glad.

she is now 15 years old and going into grade 10 we still have our struggles but not nearly as bad and she’s not as dependant on me anymore.she definitely has made my life worth living