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Living with Cerebral Palsy

This section is a place to share stories about Living with Cerebral Palsy.

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itty-bitty ian


by: Kayla on Tue, Aug 28 2007

My son was born 10 weeks early, weighing 3lbs, 3ozs. The day we left the hospital in San Jose the doc told us that he had some bleeding on his brain. At the time I had no idea what it could cause, they only told me that later on in Ian’s life he may have some stiffness in his legs. We followed up with early start for physical therapy Eventually we went back to Good Sam (where Ian was born) where he saw the NICU follow-up specialist. One look and she knew by the pointing of his toes there was something we were not being told. She suggested that he may have CP but we needed a neurologist to get the diagnosis. 1 week later thats exactly what we got. “Ian has spastic diplegia”. It’s our first step into this long rollercoaster. I have no idea what to do now, I’ve read about the surgeries, the botox I just don’t know where to start. I’m looking for some help, I know some of you may have been in the same situation so I’m seeking your guidance. Thank you!

Comment on this

Comments
  1. Wed, Mar 19 2008
    HI there, You posted this message quite a while ago -- what has happened since? Have you been receiving additional services as a result of the diagno...Read
  2. Sun, Oct 21 2007
    my son was born 3 lb 5 oz and 10 weeks early. he was diagnosed with cp. his cp is mild. he is now 21 months old and is just starting to crawl. your ba...Read

August 2007

  • Best boyfriend ever!!! - by Betty - (Wed, Aug 29 2007)
    About 2 1/2 years ago I met Tony. He has cerebral palsy. He is a hard working man and he takes care of his four children. He looks like a normal person; it’s just his legs that he can’t move. He requires crutches to walk. I love this man because he is an example to me. [more..]
  • CP Child - by Catherine - (Wed, Aug 29 2007)
    My doctor scheduled a c-section for my baby, however, I went into labor the night before. By the time the doctor arrived to the hospital I was a seven. [more..]
  • itty-bitty ian - by Kayla - (Tue, Aug 28 2007)
    My son was born 10 weeks early, weighing 3lbs, 3ozs. The day we left the hospital in San Jose the doc told us that he had some bleeding on his brain. At the time I had no idea what it could cause, they only told me that later on in Ian’s life he may have some stiffness in his legs. [more..]
  • sierra - by maria - (Mon, Aug 27 2007)
    my daughter is 3 1/2 years old she has severe muscle spatisity following an in utero stroke she was diagnosed with cerebral palsy they said she would never walk talk or sit up well she has over come all those milestones [more..]
  • Caiden aka Bruiser - by Vicki - (Mon, Aug 20 2007)
    My beautiful son just turned 3. He has mild spastic diplegia cerebral palsy resulting from my undiagnosed gestational diabetes He weighed 11 pounds 14 ounces at birth. He suffered two strokes, a blood clot in his brain and a bleed in the back of his brain. Caiden was placed in a NICU for 3 weeks and was intubated for a week for severe respiratory distress. [more..]
  • My heart and soul - by G.A. - (Mon, Aug 06 2007)
    My little girl was born 2/2/95.She weighted in at an amazing one and half pounds. We were told from the beginning that she was going to have problems. That she was going to be a very special person. At two months old she went for her second shunt, for the first had failed to do the job. At three months of age she was finally allowed to go home. [more..]
  • My Story (Cerebral palsy) - by TG - (Mon, Aug 06 2007)
    I am a thirteen year old girl with a twn sister which I think is one of the reasons that I am ashamed of having CP. I was diagnsed at a young age and born at a very low birth weight. I have experienced first hand the pain, the difficulty and the setbacks of CP. I know how it feels to not be able to do someting as well as others and how it feels to be looked at and made fun of by strangers. [more..]
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