Living with Cerebral PalsyThis section is a place to share stories about Living with Cerebral Palsy. Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download Caiden aka Bruiser My beautiful son just turned 3. He has mild spastic diplegia cerebral palsy resulting from my undiagnosed gestational diabetes He weighed 11 pounds 14 ounces at birth. He suffered two strokes, a blood clot in his brain and a bleed in the back of his brain. Caiden was placed in a NICU for 3 weeks and was intubated for a week for severe respiratory distress. He was the largest baby they had seen there in that NICU. This is where he got his nickname, Bruiser and it is a perfect fit for this boy. Today, Caiden walks with splints on both legs, undergoes botox treatments for his legs, speech therapy, physio therapy and is being enrolled into an early entrance program at school in the fall for a learning disablility. There is nothing that this boy of mine cannot do, and there is nothing that I don’t allow him to do. He surfs with his snow board on the coffee table, skateboards down the lawn, runs like the wind, and rides on our quad standing on my knees. (All the while he is wearing a bike helmet) He has no fear. However, I do not allow it if it may harm him, but I don’t stop him if all he will get is a slight bump on the noodle. Caiden has gotten this far because of his own will and determination. As a child with Cerebral Palsy, a parent may become over protective of that child…..I was convinced that the opposite was what Caiden needed, within reason of course. I would not allow him to do something that would severely harm him. Caiden will tumble off of the coffee table and laugh. I have learned to let him evolve, to experience, and to learn his own limitations. He has a passion for quads and motorcycles and this is a passion that I endorse. These sports are something that he will excel at someday. He will not play football or soccer, he will never play hockey or baseball……but put this little daredevil on a motorcycle and watch out. Someday you will hear about the young man with cerebral palsy who is a world champion dirtbike racer. Mark my words…..he will be a motocross champion someday. I hope that my story inspires other parents to allow their child to become whatever it is that he or she is meant to be, with or without a disability. Comments
August 2007
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