Coping With Cephalic DisordersThis section is a place to share stories about Coping With Cephalic Disorders. Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download Double Cortex Syndrome 
Our beautiful daughter, now 6 years old was born apparently normal. Following delay in developmental milestones, speech delay etc she was said to have a learning disability and global delay. Motor issues were also identified. At 3 1/2 years following the onset of seizures and an MRI Scan she was diagnosed with double cortex syndrome - apparently a very rare syndrome. We can only find medical information. We would love to talk to some other parents in our position. She is a fantastic little girl and looks ‘normal’. We were lucky after a long fight to get her into a disability service where she receives helpful Occupational Therapy, Physio, Speech Therapy and Psychology services. She is in main stream school at the moment and even goes to speech/drama/dancing on a sunday!!. If anyone has any information ….even a little, please share….information is power!
August 2008
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