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Coping With Cephalic Disorders

This section is a place to share stories about Coping With Cephalic Disorders.

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Courtney, a baby with anencephaly
by: Karen on Mon, Jan 21 2008
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It was my first pregnancy, in 1978, and I was so happy. My pregnancy prgressed normally, but something was wrong. I didn’t know it at the time, but my little girl had anencephaly.

My doctor began thinking something was wrong when I didn’t go into labor. I was due on April 19th and Courtney wasn’t born until May 18th.

We went to the hospital and I was sent to xray. They couldn’t feel her head and I knew something was wrong.

Courtney was born on May 18th, and lived for 3 and 1/2 hours.

She is my angel and someday I will get to see her….I can’t wait.


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January 2008

  • Courtney, a baby with anencephaly - by Karen - (Mon, Jan 21 2008)
    It was my first pregnancy, in 1978, and I was so happy. My pregnancy prgressed normally, but something was wrong. I didn’t know it at the time, but my little girl had anencephaly. [more..]

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