Coping With Cephalic Disorders

lemme tell you about my children, i have 5 children including my stepdaughter, Rhian. my stepdaughter is 11 now and shes doing great, no problems at all……Tyler who is my oldest child, he turns 4 in may, we found out he has got quite alot wrong with him, ill just name em Global Develapment Delay, Spastic Quadriparesis, Microcephaly, CNS Migration Abnormalities, but he is a happy go lucky child. he loves been around people and trying to join in things, he tells us if he happy or sad by crying or laughing, he doesnt speek yet, and he uses a wheelchair as he cannot walk……

Callum, hes 2, hes got Global Development Delay, Left Hemiparesis, Imaging Abnormality Demonstrating Hemi-Atrophy and Polymicrogyria, he has eppilepsy from this. hes a happy go lucky two year old, he does have behavior problems and also has problems with his left hand side of his body, with stiffness and unable to use his left hand properlly…..

Charlotte, shell be two in december she has Global Development Delay, Microcephaly, Right Hemiparisis, was born at 32 weeks, Mild Distress Syndrome, Bilateral Intra-Ventricular Haemorraghage with Ventricular Dilation and Left Peri-Ventricular Haemorrhagic Infraction with Porencephalic Cyst formation, Spastic Quadriparesis, she is very small in size and in 1 year olds clothes. she has problems using her right side of her body and is unable to walk yet……she is happy go lucky too, she had very few words and does understand when you say yes or no………

i also have another son called Simon he was born 5 weeks early and he is 3 and half months old now, we dont know as yet if there is anything wrong with him as no tests have been done………….

i find it so hard sometimes to understand why my children are like this, but i then think to myself god only sends special children to special people and he knows they can look after them if you know what i mean………thanks for listening, kayleigh and her familly xxxxxx