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This section is a place to share stories about Coping With Bell's Palsy
Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.
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My Bouts with Bell’s
by: Linda
on Wed, Jul 16 2008
In January, 2000 while visiting our daughter and family in Germany, I woke up with the left side of my face paralyzed. Frightened of what was happening we went to a German Emergency Room. I was treated immediately, ct scanned then told by a neurologist to see a plastic surgeon the next day. I did and he prescribed 250 mg of steroid by iv to start, I received iv steroid for 5 days, then gradually was weaned off them. I have only one reminder - a paralyzed nerve in the floor of my mouth which I discovered while having dental xrays.
In mid-June 2008, I had a headache and thought sinus infection. The pa at my doc’s gave me amoxycyllin and I thought everything was okay until the muscle on my right jaw locked up the next night. Realizing the symptoms of Bell’s I saw the doc the next day. He felt due to my age (61) I should have a ct scan to rule out any brain involvement. Before I left his office, he did accupuncture on me and I could at least close my eye. He prescribed 80mg of Prednisone and Valtrex while waiting for blood work. I believe my first bout was from the old chicken pox virus. When my blood work came back, I had tested positive for Lyme Disease Bell’s is a result of second stage undetected Lyme which I found out through internet research. My doc continued to treat me with pred, doxycycline and accupuncture. Not only was my face paralyzed but the Lyme causes muscle and joint pain as well. The accupuncture has helped not only the paralysis but the pain. I think that more people in the Northeast should be made aware of the ramifications of undetected Lyme. After 3 weeks of treatments, my Bell’s is almost gone. I still can’t blink automatically which is annoying but I can close my eye and my face can’t completely smile but it is considerably better. I feel like my “mission” is to make more people aware of Lyme Disease and also Bell’s. Thanks
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July 2008
- BP - by k - (Tue, Jul 29 2008)
last thrusday i was out with my family an my left eye began to twitch. i thought it was nothing because i have weak eyes an twitching is sumthin they just do.
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- 2nd time around - by AJC - (Tue, Jul 29 2008)
July 4th 2007 my husband woke up to no facial movement on his right side of his face, as many due we went to the hospital they diagnoised him with Bell’s Palsy, gave him meds and sent us home.
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- MY POOR BABY - by ELISE K. - (Tue, Jul 29 2008)
My daughter got her first case of Bell’s Palsy when she was 2 years old. I was so scared that she had a stoke. Doctors told me that there was nothing I or they could do to help it.
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- Was it the blueberrie? - by Barbara - (Fri, Jul 25 2008)
Onset, July 18, 2008
My husband and I were out picking wild blueberries, I ate one, walked back to the cabin and thought there must have been a bug on the blueberrie and it bit me, the inside of my mouth felt numb.
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- Woke up with Bell’s Palsy - by Sylvia - (Wed, Jul 23 2008)
I woke up yesterday, on July 22 with BP, not that I knew what it was at the time. I’ve been promised that my case is mild and will go away in days or weeks.
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- My story….Bell Palsy 7/19/2008 - by Mari - (Tue, Jul 22 2008)
Hello, I too have been diagnosed with Bell’s, I am 58 years old, it all started with severe head pain like a headache, than an earache, when to see the Doctor on Thursday, thought I had an ear infection.
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- Bells Palsy Sufferer - by Bill - (Tue, Jul 22 2008)
I have had bells palsy for 13 months as of July 12th,’08. The entire summer after the onset my right ear was very sensitive to cold air (air conditioning in the house and in my car).
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- Ace.s story - by Abe A. - (Tue, Jul 22 2008)
Date July 2008
Thursday, after reading all day noticed a buring in my rt eye, thought eye strail.
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- i dont wish this on anyone…very Painful. - by Peggy - (Mon, Jul 21 2008)
On July 8th 2008 I was told I also have Bells Palsy and it is very painful,I have the headache,like pressure in the back of my head that wont go away,and all the rest of the reg.symptoms,I lost the whole rt.side of my face.
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- My Bells Paulsy has affected both sides of my face!!! - by AH - (Wed, Jul 16 2008)
I just had my son July 3rd and was getting together to take him to his first Dr appt 5 days after and noticed that when I was brushing my teeth I could not spit!
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- Morning Surprise. - by LM - (Wed, Jul 16 2008)
Hi, I woke up in the morning with the same sysptoms as many of you. First thought was “did I have a stroke?” Checked out everything and the thought of Bells Palsy came to mind.
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- My Bouts with Bell’s - by Linda - (Wed, Jul 16 2008)
In January, 2000 while visiting our daughter and family in Germany, I woke up with the left side of my face paralyzed. Frightened of what was happening we went to a German Emergency Room.
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- This is annoying - by JB - (Thu, Jul 10 2008)
So, after reading a couple of stories, I should probably back-up a few days on my situation. Some of this info may/may not be related to the Bell’s Palsy that I now have, but it’s worth noting because it’s been a crazy week and there seems to be a lot of unknowns about BP!
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- This is miserable - by Jason - (Wed, Jul 09 2008)
I woke up last Saturday morning with B.P. I thought I had a stroke and called 911. I had never heard of BP .
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- MY FACE FEELS FUNNY - by KATIE - (Tue, Jul 08 2008)
I THOUGHT I HAD BURNED MY TOUNGE ON TUE EVERYTHING TASTED FUNNY. THEN FRI THE FOURTH OF JULY MY FACE WAS PARALIZED!
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