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Coping With Bell's Palsy

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My daughter is 4 and has Bell’s Palsy
by: Tammi on Wed, Aug 22 2007
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My daughter is only 4 and has Bell’s palsy. We woke up one morning 4 1/2 weeks ago and the left side of her face was drooping. At first it looked like her face was really swollen. We brought her into the doctor immediately. I work at a clinic/hospital and they advised me to just wait until clinic hours and bring her in.

She was diagnosed with blocked salivary ducts. As the day progressed we noticed her mouth was definitely drooping. Called our doctor again and she mentioned it could be Bell’s. We decided to take our daughter to a pediatrician for a second opinion the next day. Madison wasn’t in any pain, but we were very concerned. The pediatrician also agreed with the Bell’s Palsy diagnosis. They also drew blood for a Lyme’s disease test and Epstein-Barr syndrome. Both came back negative. We were given an antibiotic for her to take in case she did have Lyme’s. It was a devastating weekend for us. I can’t imagine my little girl not having her smile back. I couldn’t just leave it at just waiting it out. The pediatrician told us that it could take 10 days to many months for her to regain control again of her face.

The following Monday, which was only 5 days later. I talked to our family practice doctor. She said that we would need to wait at least a week to see if there was any change. If there was no change, then they would try a steroid. So, no change after a week. She was put on 1/2 tsp of Prednisone twice a day for one week. We saw no change with this. We brought her in once again. More labs done to check her white blood count. From my research on Bell’s I had also read that facial paralysis can be caused by leukemia. Thankfully, her’s is not caused by that.

I was then told it would be too late to try her on Acyclovir, which is used to treat Herpes Simplex 1. This has also been shown to speed the recovery in patients. We were told once again to just wait it out. It will get better with time. There is no need for us to come in again.

As parents, and as a mother, I just can’t sit here and wait. I want her to be back to normal now. People tell me how lucky we are that she is only 4 and not self conscious yet. Once she realized that her smile is crooked, she is self conscious. Looking at pictures we had taken with family over this past month, she had told me the pictures were just ugly. I asked her why?, and she said because she had a crooked smile. I did my best pep talk and how she was not ugly and she had a very pretty smile. Later that night she asked me if she would have an ugly crooked smile forever. I told her of course not and to not worry about it. I wanted so badly to just hold her and cry, but I will stay strong for her.

I can understand how you are feeling. I know doctors try to be helpful. But they have to understand, as a parent, you would do anything for your child. I am at a loss of what to try now. I have been researching alternative treatments. A friend of mine, who is also a massage therapist, has suggested using a combination on essential oils and massaging them on the skin. I am up for anything at this point. Hopefully it will help things out. If you have any helpful hints for me, they would be greatly appreciated. I am so sorry if I sound negative. I was just so relieved to see a post from someone else with a younger child with Bell’s Palsy. We also get told that she is really too young to have gotten this. Well, if she is, should they be checking for something else??


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August 2007

  • What do i tell her at 6??? - by Sonia - (Thu, Aug 30 2007)
    I have 6 yr old twin girls, on friday night i noticed that she had a crooked smile, we took her to a local hospital and were told that she had prob had a reaction to an insect bite and to give her an anti histamine, which made her drowsy. [more..]
  • 19 years old with Bells Palsy - by SCL - (Thu, Aug 30 2007)
    Two years ago when I was 19 I started feeling numb in my face and around my ear. I couldn’t feel anything, I couldn’t taste anything and this lasted a day until I couldn’t move the left half of my face. It was then that I worried, due to the fact that I thought I had just pinched a nerve again, and I made my way to see my doctor. [more..]
  • My sister - by Tim - (Thu, Aug 30 2007)
    A few days ago my sister was diagnoised with Bell’s. The odd thing is that my cousin also had it about a year ago. When he first told me about the symptoms he made it sound as if it was only a temporary thing, so like a jerk I teased my sister about her palsy. [more..]
  • Bells’ palsy at 14 - by Larissa - (Thu, Aug 23 2007)
    I was 14 years old when I woke up one morning with half a face paralyzed. After seeing the doctor etc, it’s confirmed to be bells’ palsy. I was often complimented that i have a pretty smile etc and being unable to smile or blink is really shocking and depressing for me. I remember in the first two weeks, I wake up every morning crying as my life ahead seems a blank for me. [more..]
  • My daughter is 4 and has Bell’s Palsy - by Tammi - (Wed, Aug 22 2007)
    My daughter is only 4 and has Bell’s palsy. We woke up one morning 4 1/2 weeks ago and the left side of her face was drooping. At first it looked like her face was really swollen. We brought her into the doctor immediately. I work at a clinic/hospital and they advised me to just wait until clinic hours and bring her in. [more..]
  • My “BP” started on 8/28/1999 - by Dee - (Tue, Aug 14 2007)
    I was diagnosed on August 28th 1999 I was told that there were no treatments and it would go away within 4 to 6 weeks. I was o.k. with that. Don’t get me wrong it was HELL but if it was only temporary I could handle this! I consider myself to be a fairly strong person. I was told that one out of every 600 people get this nightmare, and 90% of those heal completely. [more..]
  • They say Bell’s palsy doesn’t run in family - by j.g - (Mon, Aug 06 2007)
    I had bell’s palsy when i was 16 years old. The first time i knew that something was wrong was when i went to blow dirt off a video game and i couldnt blow. Well i just shook my head and went to bed. The next morning i went to eat breakfast i kept slobbering and said to my self i must be clumsy today. [more..]
  • Too young for Bell’s Palsy! - by Regina Clore - (Wed, Aug 01 2007)
    She’s Only 8!!!!!! Yesterday was something out of a movie.I came home from work to find my 8 year old daughter’s eye blinking rapidly and her having no control of one side of her face.it took everything in me to stay calm for her sake. [more..]
  • Limited success with exercises - by CW - (Wed, Aug 01 2007)
    Well, it’s been almost 6 months and I have not recovered from Bell’s Palsy. I have been keeping a daily journal since it happened in February, 2007. I woke up with an ear infection and went to the ER. They diagnosed me as having cellulitis and gave me medication. Three days later I woke up with Bell’s Palsy. [more..]
  • Other links to Bell’s Palsy? - by Mrs. Robinson - (Wed, Aug 01 2007)
    I came down with Bell’s Palsy last saturday. I had a sore throat for a couple days only on the left side, and then the left side began to get paralyzed. I went to the Emergency room to rule out a stroke and they said I had Bell’s Palsy. I am 41 years old, 13 weeks pregnant, and my thyroid was severely underactive at the time of onset. [more..]

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