Living with ALSThis section is a place to share stories about Living with ALS Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download I’m scared 
My mother died of ALS in January of 1980. It is the worst desease anyone could have. There is no cure and no one knows what brings it on. I am so scared that I may get this desease. I don’t know if there is a simple blood test to let me know but I sure would like to know. I just turned 48 and that is about the same age that my mother was dianosed with the desease. I can’t help be scared. I heard it was heriditary. Not sure. I wish I new. I have talked to this one doctor and he said that most likely I don’t have it but upon reading the general motor skills test is often misleading. As I get older I have had these thoughts come into my head. Why can’t I just live. I also just became a grandma. My mom never saw any of her 4 kids get married. She wasn’t here when any of the grandchildren where born. It scares me that I won’t get to know my grand children. I hope and pray for the families out there with ALS that they find a cure and soon. I also hope they come up with better testing.
October 2008
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