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Living with ALS

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My life with ALS
by: Marcy on Mon, Sep 29 2008
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I have never done this before,talked online about my ALS I was diagnosed 3 years ago I can still use my hands to some degree. My husband quit his job to stay home and take care of me.I can still swallow some ,but am thinking strongly of getting the Peg,i t just seems like the last straw,all the money they have taken in on the Jerry Lewis telthon you would think,oh well not that many have it so they are not that interested.

I have already been scammed 2 times(my own fault).I took 6 mos of high doses of Rocephin,(4000.a mo.)then to Costa Rica for 50 mil of stem cells 20,000.I guess i am a target,but I will never give up.

I believe in God and I know he will help us all soon.
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  1. Sat, Oct 25 2008
    Thanks for sharing. You are a remarkable person and so is your husband. I have watched 5 of my family members deal with this disease and it is bruta...Read

September 2008

  • My life with ALS - by Marcy - (Mon, Sep 29 2008)
    I have never done this before,talked online about my ALS I was diagnosed 3 years ago I can still use my hands to some degree. My husband quit his job to stay home and take care of me.I can still [more..]
  • Living with ALS for over 10 years - by Maria - (Mon, Sep 22 2008)
    My sister was diagnosed with ALS in 1995/1996. She is still alive and living her life day by day. [more..]
  • Not knowing on time - by DD - (Mon, Sep 15 2008)
    My father-in-law died of ALS on 8/11/08. After months of testing he found out just 6 days before he passed, while he was in ICU on a ventilator. [more..]

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