Healthcommunities.com
Home Search SiteMap Forum Store Physician Board

Living with ALS

This section is a place to share stories about Living with ALS

Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation.

You may also Help others by sharing your story.

To quickly access health information from your website's browser, download
Healthcommunities.com's healthchannels toolbar.


My Dad
by: Karen on Fri, Feb 01 2008
Facebook Twitter

My Dad has had ALS for 20+ years now. We have seen many levels of debilitation from the start of it to now. He has been on a respirator for almost 16 years now. My Mom takes great care of him. They lost their main helper at the first of the year, after 10years of service. All the “helpers” who have been sent out since, are ones who are hard to live up to the name of “help.” Some are more “work”, than “help”, as many of you can maybe relate to.

Many professionals are wanting to “write him off”, as communication is barely able to be “read” from his left eye blink.
I accept that most of the deaths occur with finality in lung function, but is it possible that the actual brain can be a muscle, and therefore an attacked area of the disease?

Thanks for letting me spout, and ask even “ignorant” questions.
Facebook Twitter

Comment on this

Comments
  1. Mon, Feb 11 2008
    Als is hereditary in my family. My mother and cousin currently have it. My grandmother, great-grandfather, and several others have died from it in m...Read

February 2008

  • Undiognosed and fading! - by Trina - (Tue, Feb 05 2008)
    For 12 years I have been experiencing numbness, tingling, speech problems, short term memory loss. I also have extreme brain fog, and fatigue, and have lost my sense of taste, feeling cold and hot. I feel like a spirit walking around. [more..]
  • My Dad - by Karen - (Fri, Feb 01 2008)
    My Dad has had ALS for 20+ years now. We have seen many levels of debilitation from the start of it to now. He has been on a respirator for almost 16 years now. My Mom takes great care of him. [more..]

Archives:

  • 2009 January February April August September October
  • 2008 January February March April May June July August September October December
  • 2007 April May June July October November December

    • The submissions from our site visitors do not reflect the opinion of Healthcommunities.com, Inc. (HC). The Content of HC's sites is intended for informational and educational purposes only, and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. HC does not provide medical advice. Never disregard professional medical advice or delay seeking it because of something you've read on an HC website. Always seek the advice of your physician or other qualified health care provider regarding any medical question or condition. (See also: Website Disclaimer)
    printer friendly versionprint this email to a friend  email this AddThis Social Bookmark Button