Living with ALSThis section is a place to share stories about Living with ALS Below are entries of those who have already shared their stories. We hope that you find their experiences helpful to your own situation. You may also Help others by sharing your story. To quickly access health information from your website's browser, download My Dad My Dad has had ALS for 20+ years now. We have seen many levels of debilitation from the start of it to now. He has been on a respirator for almost 16 years now. My Mom takes great care of him. They lost their main helper at the first of the year, after 10years of service. All the “helpers” who have been sent out since, are ones who are hard to live up to the name of “help.” Some are more “work”, than “help”, as many of you can maybe relate to. Many professionals are wanting to “write him off”, as communication is barely able to be “read” from his left eye blink. Thanks for letting me spout, and ask even “ignorant” questions. Comments
February 2008
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