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Living with ALS

This section is a place to share stories about Living with ALS

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Success Story


by: Steve J. on Wed, Jun 06 2007

My Father was diagnosed in April 2006 with ALS The symptoms for him really started in January 2006 when he could not grasp things correctly and he kept falling. After being diagnosed in April 2006 he became worse by the week. We as a family could not keep up with the medical equipment that he needed. First it was a walker, then a wheel chair then a bed.

By August 2006 he was told he had 3 months because the ALS was affecting his lungs. By August 2006 he had a feeding tube, could barely talk, could barely move his hands, could not walk, could not swallow his own saliva. The family came over to say thier goodbyes. Then, graciously, he started rebounding and getting better. Slowly he started having more energy and started being able to eat again. Then he started breathing better. By December 2006 he started to walk again. Now, June 2007, he is walking every where, upstairs, downstairs. We even went to the beach last weekend.

He went to a major medical center and the doctors were absolutely amazed that he was actually getting better. They told him to keep doing what he was doing. Now they said he still has ALS, but he has his life back. My reason for sharing this is, no matter how bad ALS gets, do not quit. There is always hope, and it is possible to get better no matter what else you read. When you do get better, appreciate all aspects of life and be as productive as you can. Thanks for hearing my Dad’s story!

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June 2007

  • Success Story - by Steve J. - (Wed, Jun 06 2007)
    My Father was diagnosed in April 2006 with ALS. The symptoms for him really started in January 2006 when he could not grasp things correctly and he kept falling. [more..]
  • There are worse things… - by Heidi - (Mon, Jun 04 2007)
    I have ALS. I tell family and friends, there are people who died today, who never saw it coming. Maybe they had a car wreck or were a victim of a sudden fatal accident. They didn’t have a chance to tell their family and friends that they loved them…I do. [more..]
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